After the death of our month old baby Melody in 2012, and receiving minimal support professionally, I knew from quite early on in this journey, I wanted to support others going through this rather unique experience, to not feel alone and unsupported.
Soon after her death I made online connections, gained support which in turn led to me giving the support too, six months later became an admin on a pregnancy loss forum, where I continue to do so now.
But I wanted to do more; late 2014, early 2015 I was approached with an offer of a venue within a new centre in Chard, where they wanted to include my Pregnancy and Infant Loss Support Group idea.
Being a little nervous about doing it alone, I contacted Mel Scott from baby loss charity Towards Tomorrow Together
to see if they’d be interested in supporting the group, in May 2016 (Melody’s original due date month) my dream became a reality when Melody’s Voices was born.
Slow start, but is becoming something truly amazing to be a part of. I’m really proud of what Little Daffodils have achieved.
The Butterfly Awards
Little Daffodils became the new name after I returned from The Butterfly Awards in 2016, stunned by how minimal bereavement care is in the West Country, it shouldn’t be, it was then I realised that the future of this particular group needed to be a lot more than Melody, a legacy that one day once the group is well used and I may find a time to say enough – I’ll never stop talking about her – but the group, the support can carry on years down the line.
Daffodils are her flower but can be a symbol of short lives, which of course represent who we are.
The project as a whole is so much more than supporting sleeping babies (I, as well as some other bereaved parents, aren’t keen on the saying “sleeping babies). I’ve found there’s a lot of awareness about the babies who were born still ‘sleeping’ or miscarriages, that many types of loss get lost. So like ours where we were given miscarriage and stillbirth leaflets rather than ‘post’ neonatal death leaflets. Doors slamming in our faces because she was too old or too young, it was something I wanted to change, leave no-one out. I can’t have anyone being made to feel the way we have done during this journey. Days where I have questioned whether our daughter even mattered; that’s not right.
Life for many families change completely, loss of their baby also brings the loss of friends and family. Leaving families alone and incredibly confused.
As well as supplying memory boxes (which was another thing we missed), which are filled with items to make memories with a precious baby who can’t come home.
To offer group support, advocacy, information and advice.
We didn’t get a lot of information when we left the hospital; things like the baby section of the cemetery in the town close by, or that there is a huge range of coffins, or that cuddle cots existed or that actually parents. Families can take their time with their baby after their hearts have stopped.
All too soon, the last goodbye becomes forever.
Something to assist families with these early days; questions they never knew possible, for us most of our questions were too late.
We also support the work of the charity Tommy’s. Raising awareness through them, for research to reduce pregnancy complications.
We have a Facebook group (which is Private)
And a Page
Find out more about when we meet, and about the Family Session coming up.
So, this is Little Daffodils.
If you have been affected by the loss of your baby.
Know that you’re not alone.