Tag Archives: grief

melody and me

Dream Sequence

I met her in my dreams the other night; this is something which I have not done in a very long time.

As much as you’d imagine a dream to have a happier ending it didn’t, but it also wasn’t a nightmare either – at least not the ones I had come to known in the beginning. Death had still found her, but the dream brought me a second chance.

The Dream

A phone call came. I don’t like phone calls; no idea why I am just one of those who just isn’t keen. It was the hospital, a voice I recognised with a background of an echoed reception area –  I knew the sound well; behind the voice, I could hear the long beeps from machines, the long beep which used to tell us she was on too much oxygen – that sound seems to stay.

There had been a mistake, she had somehow been left behind at the hospital; forgotten maybe and that the funeral we thought we’d had for her was just an empty box. Nobody knew how or why it had happened; I was then asked whether we’d like to see her. It was hard to know what to decide; I guess even in my dream it had been years – but we agreed, surely they wouldn’t have offered if there was nothing to see.

When we arrived the people who stood before us seemed shocked; they began to explain that she was somehow perfectly preserved like no time had passed since she had. I wanted to see. The people parted ways to reveal a baby, laid in a cot – peaceful and unmoving. I looked at her Dad and he me; I had to pick her up. As I held her she seemed a little bigger than I had remembered, but it was her, the slight tape embellishments on her cheeks, her little nose much like her siblings, and her fine strawberry blonde hair that covered her head.

Never Let Go.

When she died, we didn’t know that we could have spent more time with her or that there were still more memories to make. I knew this dream would end, but I also knew I had to make the most of it, of her. We bathed her, not once putting her down, kissed her forehead – knowing that her temperature wasn’t right, only made me feel more determined to warm her with love and kisses. I was able to snuggle her in bed, which I never got to do. To sit and choose a coffin whilst holding her in my arms – morbid I know, but it is what is meant to be done when it is one of the last things to do for your baby, we never knew about the choice of tiny coffins. Everything was to happen quickly, I didn’t once put her down. the weight of her felt comfortable in my arm – I didn’t want to let her go again.

But I did. I was able to place her into her new pink coffin, placing her gently on to cotton sheet we had placed for her. It felt all so different.

I got to hold her longer and kiss her more, her eyes remained closed.

As my eyes opened.

 

 

Dreams.

I think I speak of her so much (when I can), during my awake time; that I guess I don’t need to be searching for her in my sleep too. My brain has become so accustomed to knowing that she isn’t with me, that I guess my sleeping mind doesn’t need to search for something my awake mind has gotten used to. I have never dreamed of her as a growing child, again maybe because my brain knows she has gone. I simply can’t imagine what she would have been like.

In the beginning, the nightmares came, mistakes before she died, the most obvious one about – were they 100% sure that she had died. Those dreams faded into nothing, they all stopped. I am glad in a way that I don’t have dreams about who she could have been. I’m as comfortable as I can be with not imagining that.

 

I don’t know why I suddenly had this dream after all this time; I know there is probably the message of regret and things we weren’t able to do with her. For that night, those fictional moments I was able to hold her again.

 

dreams

Melody and Me

Memories. The Weather

The weather is always a big conversation opener, particularly at the moment whilst we have the snow – being in the South West of England, it is the first time since 2013 that we have had any snow to actually speak of. I was pregnant then, with Melody’s little sister, the year before I was pregnant with Melody.

There was snow annually; I remember not wanting to go out in case I slipped – something I have done a lot in the snow; I didn’t want to risk hurting my unborn baby. I remember looking forward to our new baby’s first experience of snow how she would react, lots of wonder.
She never got to see the snow, but the following year I was pregnant again unable to risk the snow again; fearful of making those magical snowy plans.

The winter always reminds me of her, as she was alive and a fully expected baby; it was exciting; which is exactly how it should be when you have a growing bump.
We do obsess with the weather as a nation, most often it does bring people together; where the snow reminds me of her pregnancy; it also brings some memories of her life on the opposite scale.

Heatwave

In the year that she was born – 2012, the whole time she was born we had the most amazing weather, an unusual weather for the time of year (February-April). It would be the hottest March on record. The day she was born was a glorious sunny day, I could remember just being able to see what the weather was doing through the window from my bed; I wish I had taken pictures of our surroundings that day; it makes up part of her life.

The Spring had come early that year; I guess that is why we associate Daffodils as her flower.
There were days when we had to be away from the hospital – often at their request, we’d walk into town which is a fair walk away, particularly when you have had major surgery, often without a cloud in the sky it was beautiful blue skies for days on end, we could sit in the hospital grounds to enjoy the sunshine. I wore vest tops and flip-flops; whilst my husband had his sandals; it was hard to imagine that I even got sunburnt in March.

Apparently, it is such a rare occurrence (at least according to weather records); I always enjoy associating the heat wave with her life, she was able to feel the sun on her face a couple of times too whilst she was out having a cuddle; I am glad she did. It made our visits easier; it helped us to be able to find space away from the building.

It rained on the day of her funeral, just as we began her celebration – it then became the wettest Summer on record.
These little memories are a big deal; these are the nicer ones.

memories the weather

Then she was six.

Then She Was Six.

Today is her birthday, a day where I am meant to share little things about her – a before and after picture, a celebration of life and of growth. I thought about sharing her birth story to give more words; but it is one I have told so many times, people are bored. People expect me to have moved on, grief is boring it is ugly – nobody ever knows what to say – I am so open I guess that, I assume people are okay with me speaking her name; I mean I am. But they’re not, not really; especially as it is six years. But to me, each birthday, each day that leads to her birthday and then those days which lead to the anniversary – they feel like six weeks; to everyone else, six years is a bloody long time ago – for that I am painfully aware.

It is six years today since she was born in a rush; I remember every single minute – I try hard to savour it, just as I do my other children’s births. It is what we Mums do; her birth story should not be any different. But it is.

I probably should have moved on, and I have to some degree, of course I have it isn’t as dark as it used to be; but I am still allowed to feel like shit – not all the time (even if it were all the time that is okay too); the hardest thing to process, something I will never truly understand, is why our seemingly healthy baby died.  I’m allowed to feel pissed about that. About why our baby had the best odds, why being a girl meant she should have come home, why every bloody thing was just a little too late – she never got to come home.

I do wish sometimes that I could be understood; just a little about why I continue to talk, to mention her name, to be angry even all these years later. I guess it is that unimaginable, that it makes it easier for people looking in to move forward, to forget; to tire of the baby who never even came home who died years ago. “She should be over that.”

 

Everything about the 26th February should have been different; for so many reasons. Yet today no candles will be blown out, on the cake which we have all eaten that she will never get to taste; no presents to open or badges worn to school. An empty space in the classroom, yet nobody would even notice.

birthday

But we do, we know that there should have been a girl today turning 6.

If Only.

Her Birthdays

One

Two

Three

Four

Five

 

The Waiting Game

Melody and Me

A Photograph. Infant Loss

In parenting there is such constant competition.  
My baby took their steps before yours.  
My child read a whole book before yours. 
I’ve done so much more as a parent than you. 

 

It is hard to know that even in the devastating community of baby and child loss that even then there is some kind of competition.
There shouldn’t be.

I remember feeling particularly bad because all other baby loss mums had a shelf or something in their home to remember their babies with, I didn’t.. But now I have and I don’t really like it.
Over the course of the years there’s been a lot of mention about the quantity of photographs I have for our daughter, the clothes, the memories we were able to build.
How I’m lucky I got to spend time with her.
How lucky to have a “million” photographs of her.
(of course it isn’t a million, maybe just about 50).
I know it is 50 more than other parents, but it also 50 less than others too.
I feel sad that I am made to feel less because I have these photographs, these photos like I said others may not have.
When the first photograph was taken, not by me but some random nurse, I’d not even met her, I didn’t know that the photograph that arrived in my room was the only photograph I would have knowing she was alive at that point.
I was stuck to the bed on drips, body still numb, still really poorly and I was desperate to see her, to know she was OK.
John went to see her, midwives went to see her EVERYONE went to see her, they returned with photographs and even a video.
They’re precious to me.  The first few photographs at that point were the only things keeping me going.
Once she’d come off the ventilation, I knew then I needed to document everything about her journey.
Her life, because at one point, she was coming home, these photographs were meant to be her story to tell her at her 18th birthday.  They were never meant to be.

“In Memory of.. “

I have empty folders of days I’d not photographed or days where I wasn’t allowed to visit.  To me now that kills me that I don’t have every single day of her short life.
She was not meant to die.
I don’t have cuddle cot photos, or bed sharing photographs, we didn’t get chance to spend extra time after she died, we didn’t get that option.
So when I share the photos I have it isn’t to hurt anyone else, for attention,  it is because it is all I have, I don’t expect other people to comment on “how lucky I am to have these photographs”.
I hear this often, as well as “at least you got time to with her”.  Same with everyone else it was never enough.
Well because if I had a choice, the same choice anyone in our situation would have, I’d swap the photographs for her any day.

Every single baby/child loss parent is in this shitty time together. Nobody’s journey is worth less than someone else’s because of how different the situation is.
I’m not lucky I got to spend time with her.
I’m lucky because I GET to be Melody’s Mum, no matter how long she lived.
This photo is her second photograph, (her first she is completely naked flat out in her incubator).
Here she is Two Hours and Fifteen Minutes old. There are a few taken close together.
At these moments I did not know how many more pictures I’d get.
Whether this would be the only way I’d have seen her alive,
I didn’t know a thing, apart from she was stable.
But to me it could have meant anything.

 

 melody and me
This is her second from last alive, (her last is with the three of us broken beyond repair, watching the vent being removed from our precious daughter).
When this photograph was taken, she was 34 days One Hour and Ten minutes old.
We had no idea that she would die.
We had no idea that this photograph was going to be the final one of our then normality.
We had no idea that this photograph would turn into a part of a memorial.
We had no idea that LESS than 24 hours after this photograph was taken she’d be dead.
We have photos of her after her heart stopped beating, and in the chapel of rest, only but a few have seen that one (the hospital ones only myself and John have seen those).
I cannot bear to look at them, this may sound particularly ungrateful to anyone who hasn’t got photographs,
I can’t imagine that loss, that feeling.
But to me Melody is so like her sisters, and even her brother at times, seeing her in such a devastating way, only reminds me, not just of the loss of Melody, but the unimaginable anxieties that come with being a bereaved parent.
I don’t just see her, I see them too.
I cannot imagine ever not having photos, or for the parents that couldn’t have a footprint…because there are footprints just too small.
But please don’t make my memories, my pain any less because I do have the photos.
Because if I could choose to have any of this shit, I’d have chosen not photos and no footprints just to give her one last cuddle and one last kiss.
I’d have never let go.
Melody and Me

Different Year – Please Bear With Me

When I woke up with my pregnant bump on January 2012; I never imagined that we’d have a funeral rather than a baby. And since then January has always been different.

I like January, my son is a January baby; there are lots of magical New Year’s resolutions and plans for the year ahead. Some see it as just a day while others see it as an opportunity for a fresh start. January 2012 gave me her 20 week scan photo, and a birth date to plan for, even a start of a birth plan, with a growth scan date to break the wait up; that January we were so excited celebrating the fact we’d be having a baby *that* year. I remember it so clearly – well, almost.

The New Year brings us to that step onto the uphill climb to her birthday in February; March the month she was alive and the crash of April remembering her death, and the aftermath.

Each year I say to myself I will be okay; I will talk less, I will try to forget a little; make it easier on myself on other people around us. But I can’t. I try to keep busy – this year I have already made plans of redecorating and throwing myself into birthdays, her siblings’.

Believe me I have tried to be “over it”, to move on “I hate to see you hurting.” I don’t want or need treatment to forget her; that is definitely not something I want (at least right now).

We’re coming up to the 6th year, and this time of year for me sucks. No matter how busy I make myself; how much fun and laughter I have – it sucks. 80% of the time I think I am ok, I do just fine; but then there are other parts where I don’t and can’t cope; it is hard for people who haven’t switched their child’s life support off to really understand why six years down the line and I find certain times of the year shit.

I can be a bitch, over emotional, quieter than normal. But I can also laugh until I cry, until it hurts to breathe. It is hard.

With it being six years I can also know when people are fed up of me; they’re not too obvious, to give them the benefit of the doubt they may not even realise they are doing it but I know; like when the messages of comfort are less, people stop mentioning her, or squirm and fidget when I do – the eye rolls.

Because that’s enough now isn’t it? I have told her story so many times, shared her a lot, I have been open.

While I am being a bitch, over emotional, quieter than normal, who also laughs until I can’t breathe, I am trying to hold on the only memories I have, the only timescale of months that I can connect with her. The scan, her birth; her discharge date and cuddles, her death, her funeral and the May due date she never reached. They are all I have on repeat; I have nothing new to say – to most they must be boring.

But it is all we have.

I don’t always bring her up to the people I meet, in fear of scaring them off; but I am not strange because later down the line it is discovered that our one of our daughters died.

So please bear with me, while I wade through these next few months coping the only way I know how to by winging it and remembering to breathe.

Just don’t walk away. Please.

 

We’re not ill. 

Melody and Me

Grief Timescale – We’re Not Ill

My grandparents are in a cemetery; my Dad is in the same one, burial spaces decades old. I don’t visit them often, not because I have forgotten them, or I am finished missing them; their cemetery is just outside of our town, it is not always easy to pop out to visit them.

I talk about them; share memories. People listen and they too share memories of their missed loved ones.

In the years since I have lost my grandparents, since I lost my dad, since my mother lost her husband; it never ever occurred to me that there was a time limit of how we grieve.

Of course the loss of these people, were – are very different to losing our daughter. Losing her and watching others go through the loss of theirs; the way in which society brushes off our losses.

When we visit our daughter, which we don’t very often these days; we do at least for special occasions; like her birthday, anniversary and Christmas; more often than not carnival and Halloween too. As we walk through the cemetery and see beautiful fresh wreaths places onto graves whose names have faded, or are decades old; still loved and still very much a part of whoever tends to said graves. I would never judge, or have ever thought of this as an odd thing to do.

I certainly would never question their grief, or that they still tend or speak of them. Every single person’s grief is individual, we all wear it differently.

What has led me to here? Well I came across a news article about a Mum wanting to decorate her baby’s grave. This isn’t an issue to me, or to anyone other than the family. But I made the mistake of reading the comments from the general public – our society; whilst I have no idea who the family involved are I think it effects every single bereaved parent.

There were comments after comments about the Mum needing help, counselling; how she should concentrate on the children she does have. That seven years is too long to be grieving or visiting a grave.

I don’t think it is because I am a Mum who has buried her child; but it would never, ever cross my mind to question the grief of anyone – to judge another person visiting a lost loved one.

Can you imagine going to someone and passing comment about how they visit their husband too much? Or that they talk about them too much now that they’re not here.

I genuinely cannot understand why society feels the need to judge on such a personal thing, an emotion often raw. I am five years down the line – almost six; but there are some moments that will catch me off guard and take me back to that raw emotion of hearing the words. “She isn’t going to survive.”

With me being five years down the line, I have questioned myself about whether I talk about her too often; whether I visit “too much.” I have also often wished this had never happened, that she wasn’t my daughter; I have also debated about never visiting her grave.

But I can’t simply block her out; and I am no one of those people who doesn’t believe she lives within us, if you have followed over the years; you will know this is something I have always battled with myself about.

Letter M in a garden.

When I don’t visit I get that huge guilty feeling, especially if it has been weeks on end; I also feel guilty if I don’t take her something; I know she doesn’t know any difference –  and I am painfully aware that she is dead. But I am her Mother; just as I feel guilty when I can’t watch my son’s choir concert, or forget his University show.

The times when I can’t afford to buy my eldest the latest Now album; or the days when I accidently don’t treat them all the same.

So, when I read how society believes I should be how they think I should be over her by now; how visiting however many years is unhealthy. Let me tell you, the only thing that is wrong here; is not that I cry for her occasionally; that I miss and talk of her.  Please help me to understand.

It is that she IS dead; there is absolutely nothing I can do about that; but I will forever be her Mum. I can’t cuddle her or tuck her in to bed, I can’t see her walk across a stage ready for her Nativity; or hear her sing out of tune.

I can’t have a school report; or see Christmas Cards for her from her friends. I’ve never held her hand to walk across the road; just like she will never have a sleep over or taste ice cream.

She, we will have never experienced any of these things.

So if I am still visiting her grave; or including her this year – five years on or in 25 years; please don’t judge; be kind; don’t assume that I am ill.

I am her Mum; the only thing that is wrong about this is that she died.

melody and me

Family Holiday Minus One

We always knew that anything we would ever do as a family, would be filled with bitter-sweet emotions that come with knowing that there is a tiny human missing; nothing will ever fill that gap, I guess that part we didn’t really expect, but there is and we cope with that permanent void.

I’m not really wanting to talk gaps, I’m wanting to share a little moment whilst on holiday, which had us all chuckling.

I’ve begun taking a collection of photos to use when I write for Still Standing and for this blog too, something for Melody but without using her photos all the time. Whilst I am “lucky” (definitely wanting a better word), to have so many of them, I worry about repeating them too frequently, especially with the two areas I write in. I don’t have aging photos, so I’ve a prop in the hope I can include her a little more.

We went camping in Oxfordshire, days out – making memories, what better way to begin this project than to start while on holiday.

This one in particular I had placed my prop, ‘M’ onto this rather pretty looking Wishing Well, I have spent many times wishing that things were different, I know nothing will change, wishing is all I have.

I took a step back to capture this frame, as I looked into my camera my youngest daughter – Melody’s sister runs into the shot, she grabs the ‘M’ and throws it straight into the Well, fortunately it wasn’t deep, there was a grate covering the bottom, all the children yelled baby’s name, the prop was retrieved but it made us all laugh, it got me thinking; imagining this prop was replaced with her (I don’t think this by the way, ‘M’ is not Melody, I know I don’t have to justify myself – but still).

I closed my eyes and everything was different.

I imagined this five year old strawberry blonde haired girl, sitting on the wall of the well waiting for her siblings to crowd around her for yet another photo opportunity, only for her little sister to push her in the well. She wouldn’t have been hurt, she’d have been embarrassed, and annoyed for a few minutes, would have shouted at her sister, then the laughing would have begun, the whole picture would have been different, five laughing children, no props just them. It would have been a moment that would have been brought up in conversation about our break away.

But of course, I am here Day Dreaming, it isn’t okay, it is what it is, a day dream. While there is no changing what has happened, and that Melody isn’t here; but I can share this moment of laughter that included all of my children, for the very first time in 5 years 4 months and 23 days I actually felt her with us, I felt like I had five children that day.

I always say I have five children, I have never shied away from having five but the truth in my head has always felt there to be just the four of them, which to anyone looking at us can see. It felt so wonderful, to feel her there with us, it has been something I thought would never come; it is strange trying to bond with someone who isn’t here, to bond with a child who never properly felt like ours in life or even in death over the years. Very difficult to explain fully, because even I can’t quite understand that part.

Not only was a new memory made but I finally feel like Melody’s Mummy.

 

Melody and Me.

xx

 

melody and me

It Is Okay To Cry

I don’t cry for Melody a lot these days; I certainly don’t when amongst people. I’m open about our loss, about my grief; but the tears for me I prefer they fall in private, more I think because often society gets frightened by tears, by emotion.

When tears particularly of sadness show, head tilts and the comments of worry.

“They’ve been crying again.”

“I’m sure they should be over all that now.”

“They’re obviously not coping.”

“They should get help.”

 

Crying is okay, sadness is okay. They’re both more than okay to happen.

There was a charity event in aid of two charities; one of course is very close to my heart, involving Melody, out of nowhere the day made me feel incredibly emotional, it was an overwhelming feeling on how well the day was going.

I never expected to begin crying, I never expected it to remain like a cloud hovering over me for the rest of the day. I hadn’t felt that way in such a long time.

I get a tap on my shoulder to tell me my son was also in tears. As I did my best to remove him from the eyes looking at him, at us his tears turn to sobs; I knew then they for him were a release. They were loud, and so perfectly natural.

My children also rarely cry over their sister, they speak of her always, but never with sadness. He just let go so much, I could see in his face it was such a relief for him. He loved his sister dearly, although together for such a short time they were close. He, along with his older sister and us we all hurt over the loss over this girl, a loss which is incredibly complex, and so terribly misunderstood.

Having these overwhelming bursts of emotion means nothing of being strong or of signs of weakness. But of just how consuming the loss of baby, a child can be. Grief can pull you under, making it incredibly hard to breathe; I now know it will pull me back to the questions, to the complete brain fog of wondering how the hell we got from this tiny cuddly baby, to doing things for her in memory of.

People have often said they’re always worried about bringing up the name, or a memory of a loved one; this is very much the case where baby loss is concerned, for fear of making them cry. We’ll never forget who we’ve lost.

But there is nothing to be feared in crying, there’s nothing to be feared in mentioning a name.

Crying is good, whilst the reasons can be the ugliest things in the world, watching pure sobs, as I did with my son at this event, as I held him tight to my chest, I found it can be the most beautiful and uplifting thing to see, the release is empowering.

Children are incredibly versatile, I know today for him is a far better day. For me it’ll take a few days to get my head around things, I find the strength of these emotions very draining. But I will be okay.

I always am.

Melody and Me

Stages of Grief

The stages that once all are completed, everything is better.
 

 Denial.

Anger.

Bargaining.

Depression.

Acceptance.

 

 The Stages of Grief.

Since 2012 when our daughter died,  I have stepped and paused on each and every one of these stages.  Several times in fact, and in no order, but they’ve all been met and fought with on a number of occasions.
Most people know the stages,  and in the beginning in my head, with repeatedly being told that time heals,  the obsession with time I had as the weeks rolled by I would attempt to tick the words off the list in my head.
Denial – ✅ 
Anger –  ✅ 
Bargaining –  ✅ 
Depression – ✅ 
Acceptance – ✅

 All completed.  

But then, something would happen; a trigger, a thought, then one of the stages will hit again.  Not all at once or even in any order.

 

The Limbo Months

I’m currently in yet another run up to a birthday without the birthday girl, the remembrance weeks of when she was alive and felt real, then the anniversary.
Each of the above arrives in waves, each wave named after each of the grief sections.
Looking through photos of her, which isn’t something I do often, maybe for a project, or – well I don’t really need to justify myself the times that I do. I can’t quite get to grips with how she died, this baby, our tiny little baby who gave us a smile, fed, pooed..how she just died.
It isn’t about acceptance or a denial thing, let’s face it none of the five titles really are equipped to be included in baby/child loss.
I am painfully aware that she isn’t ever coming home; that she is dead, we all wish that wasn’t true. It is comprehending such a thing happening.
Even now, looking at her photos, I still cannot believe this happened to us.
Yet you still get people say “It happens for a reason.”
I think this is probably where the anger part comes in to play.

Waves

Each year the run-up to dates bring the waves, since the turn of the year, I’ve hit a couple of them, I’ve now come to realise that this time of year is difficult, how can it be anything but?
Some waves are rougher than others, nothing it seems is going to change that.
For me, the firsts were extremely painful, full of overwhelming ‘What the fuck just happened’s’?
The firsts are the worst bit. But then it turns into the seconds, when you can no longer include them in the year, or say “This time last year.”
The moving on of folk who offered mere condolences, life goes on.
The stages for those who don’t feel the full ripple effects can be ticked off the list.
It is time to move on, “it’ll only make you sad…”
Another of those beautiful quotes.
I’ve found time hasn’t healed a thing, having spoken to others they feel the same too. It is hard to imagine these years getting worse.
Then I find myself back to the feelings of
 Denial. 
Anger.
Bargaining.
Depression.
Acceptance.
Stroppy Bitch Syndrome.

Too many time limits.  Too many tick lists.
I’ve added one…
That’s me, around the same time each year, I guess there comes a point where I just can’t tolerate, little annoyances, which are probably not even that annoying.
Patience is incredibly thin.

Emotions

It is such a hard thing to explain why.  Watching friends’ children turn the age ours should have done, it is such a happy event,  but it is so bittersweet,  filled with many emotions and thoughts.
Buying flowers for a child,  cards that will never be read.
It isn’t surprising that I end up with stroppy bitch syndrome.
But I do hate the feeling too, I really don’t mean to be but I know once the heaviness of the next few months lightens, then my patience expands more.

There is certainly no black and white when it comes to the stages of grief, they certainly don’t disappear once you’ve completed them.  Let’s be honest they’re not exactly an accurate guide, or at least for me, I don’t think it is.
These waves are crushing don’t let me paddle alone.  I don’t want to drown. Stages of Grief

melody and me

Melody and Me. Holding On For Dear Life.

The countdown to Melody’s birthday.

February 7th 2012 23+1

 

I began to feel slightly headache-y, which wasn’t disappearing with paracetamol, accompanied with some blurry vision I just didn’t feel right. So to be on the safe side I booked myself in to see the midwife, due to my history of Pre-eclampsia when I’d had my daughter, I was aware of the symptoms, I kind of knew it was too early but I just wanted to be safe and get checked out…
(Excerpt from Mayflower’s Rainbow)

On This Day

 
On this day in 2012, something wasn’t right. But having clear test results days later, I knew at that moment I could breathe a sigh of relief. A false alarm, it was far too early to have this.
Counting down the days until her birthday.
Keeping myself busy; too busy to think too much.
Too busy to remember that, I really should be shopping for something for her birthday.
I don’t even know what she would have liked.
Of course, I am told not to dwell on this, not to think about this too much.
Why shouldn’t I?
I have no idea what her favourite obsession would have been?
Crafts?
Princesses?
Would she have been a Tom Boy?
I am allowed to wonder.

Dreams

I remember watching a video about skin to skin and kangaroo care, a beautiful thing to watch.
Then I am hit as if I’d been punched in my stomach, a glimpse of the poorly, premature babies.
The wave of new pain arrived again.
We weren’t allowed to have skin to skin often, we had it, don’t get me wrong.
Given the importance of kangaroo care, it was never enough.
It hurt, so much.
These precious babies being cuddled better.
Mine…gone.
I do sometimes wonder whether had we been phoned sooner, could I have cuddled her better?
A fairy tale dream perhaps.
Always felt like she never belonged to us.
Whatever is out there, will never be enough.

Melody and Me

23 Days old, we get to have skin to skin.
Tucked into my bra, she was tiny, warm and happy.
Albeit wet from a teary shower.
The power of skin to skin is amazing.
I wish we’d had more.

Projects

Working on a project involving Melody, something I needed to do.
Feeling incredibly honoured to be asked for an input, I knew I could do it, just words, reflection.
Talking about Melody.
Felt wonderful getting it down again, bringing her memory to the forefront of my mind.
Then…
The neonatal doors were closed; there was a privacy board around a cot. We walked in, attempted to walk to where our little girl had been the day before when we realise that the cot behind the privacy board was indeed our daughter. She’d been moved to ITU overnight.
A doctor came to us and told us that she wouldn’t survive… 
 
Floored for a moment. Wondering why I did this to myself.
But I’m not *really* doing this to myself, this is me, us. Our story.
Could feel the tears coming, it isn’t torture, it hurts.
But why wouldn’t it?
Our baby died.
I am trying to be busy, to be strong.
To be brave.
But I really am holding on for dear life…